@article{IR,
      author = {Li, Christina},
      url = {http://digitalcollections.ohsu.edu/record/4042},
      title = {Bioethics of information disclosure across cultures:  "don't talk with her about her condition"},
      publisher = {Oregon Health and Science University},
      abstract = {Healthcare providers are routinely faced with the  bioethical challenges of information disclosure across  cultures. This paper analyzes the case study "Don't Talk  with Her about Her Condition" (Center for Ethics in Health  Care at OHSU; See Appendix A). The impact of full, partial,  or non-disclosure of information to a patient greatly  varies in different cultural contexts. While information  disclosure emphasizes patient autonomy and informed  decision-making, it also can be controversial to improving  patient safety. In some cultures, the disclosure of a  negative diagnosis or prognosis can pose significant risk  to the patient's health, so the patient family takes  responsibility of the treatment decision-making process.  American values are adopted by people of other cultures to  various degrees, so it is crucial to appropriately  communicate and administer care services without violating  the values and cultural norms of patients and their  families. Providers must remember that patients have the  ultimate right to decide how their individual autonomy is  exercised, which may mean non-disclosure and the assignment  of a surrogate. Therefore, it is equally important to  uphold beneficence and the role of the family and community  in patient care. The recommended approach for information  disclosure is asking patients for their desired level of  participation and how much information they want to know  with respect to their own illness. This approach takes into  account the perspectives of the patient, the patient's  family, and the provider care team across cultural  contexts. In patient-provider communication, it is  imperative that cultural and individual sensitivities in  information disclosure are respected and understood.},
      number = {IR},
      doi = {https://doi.org/10.6083/m4222svm},
      recid = {4042},
      address = {2017},
}