TY  - GEN
N2  - Pityriasis rubra pilaris (PRP) is a rare inflammatory cutaneous condition characterized by widespread erythematous scaly plaques and palmoplantar keratoderma. PRP skin involvement can cause functional impairments and emotional distress leading to decreased quality of life. There is no clinical tool explicitly developed for PRP. The Individual Pityriasis Rubra Pilaris Area and Severity Index (iPRPASI) was developed as a patient-reported outcomes measure to capture the more nuanced features of PRP, such as the high prevalence of palmoplantar keratoderma. An assessment of the validity, reliability, and responsiveness of the iPRPASI is conducted in this study.
DO  - 10.6083/bpxhc41875
DO  - doi
AB  - Pityriasis rubra pilaris (PRP) is a rare inflammatory cutaneous condition characterized by widespread erythematous scaly plaques and palmoplantar keratoderma. PRP skin involvement can cause functional impairments and emotional distress leading to decreased quality of life. There is no clinical tool explicitly developed for PRP. The Individual Pityriasis Rubra Pilaris Area and Severity Index (iPRPASI) was developed as a patient-reported outcomes measure to capture the more nuanced features of PRP, such as the high prevalence of palmoplantar keratoderma. An assessment of the validity, reliability, and responsiveness of the iPRPASI is conducted in this study.
AD  - Oregon Health and Science University
AD  - Oregon Health and Science University
AD  - Oregon Health and Science University
T1  - Validity, reliability, and responsiveness of the Individual Pityriasis Rubra Pilaris Area and Severity Index (iPRPASI)
DA  - 2023-09-08
AU  - Shao, Connie
AU  - Velasco, Rose
AU  - Greiling, T.M.
L1  - https://digitalcollections.ohsu.edu/record/41875/files/ResearchWeek.2023.Shao.Connie.pdf
PB  - Oregon Health and Science University
LA  - eng
PY  - 2023-09-08
ID  - 41875
L4  - https://digitalcollections.ohsu.edu/record/41875/files/ResearchWeek.2023.Shao.Connie.pdf
KW  - Quality of Life
KW  - Pityriasis Rubra Pilaris
KW  - Patient Acuity
KW  - Patient Reported Outcome Measures
KW  - Dermatology
KW  - Rare Diseases
KW  - Skin Diseases, Papulosquamous
KW  - Severity of Illness Index
KW  - Keratoderma, Palmoplantar
KW  - PRP
KW  - clinical tools
TI  - Validity, reliability, and responsiveness of the Individual Pityriasis Rubra Pilaris Area and Severity Index (iPRPASI)
Y1  - 2023-09-08
L2  - https://digitalcollections.ohsu.edu/record/41875/files/ResearchWeek.2023.Shao.Connie.pdf
LK  - https://digitalcollections.ohsu.edu/record/41875/files/ResearchWeek.2023.Shao.Connie.pdf
UR  - https://digitalcollections.ohsu.edu/record/41875/files/ResearchWeek.2023.Shao.Connie.pdf
ER  -