000041875 001__ 41875
000041875 005__ 20240418150448.0
000041875 0247_ $$2doi$$a10.6083/bpxhc41875
000041875 037__ $$aIR
000041875 041__ $$aeng
000041875 245__ $$aValidity, reliability, and responsiveness of the Individual Pityriasis Rubra Pilaris Area and Severity Index (iPRPASI)
000041875 260__ $$bOregon Health and Science University
000041875 269__ $$a2023-09-08
000041875 336__ $$aAbstract
000041875 520__ $$aPityriasis rubra pilaris (PRP) is a rare inflammatory cutaneous condition characterized by widespread erythematous scaly plaques and palmoplantar keratoderma. PRP skin involvement can cause functional impairments and emotional distress leading to decreased quality of life. There is no clinical tool explicitly developed for PRP. The Individual Pityriasis Rubra Pilaris Area and Severity Index (iPRPASI) was developed as a patient-reported outcomes measure to capture the more nuanced features of PRP, such as the high prevalence of palmoplantar keratoderma. An assessment of the validity, reliability, and responsiveness of the iPRPASI is conducted in this study.
000041875 540__ $$fCC BY
000041875 542__ $$fIn copyright - joint owners
000041875 650__ $$aQuality of Life$$025032
000041875 650__ $$aPityriasis Rubra Pilaris$$024206
000041875 650__ $$aPatient Acuity$$040012
000041875 650__ $$aPatient Reported Outcome Measures$$011677
000041875 650__ $$aDermatology$$017631
000041875 650__ $$aRare Diseases$$034662
000041875 650__ $$aSkin Diseases, Papulosquamous$$029973
000041875 650__ $$aSeverity of Illness Index$$025910
000041875 650__ $$aKeratoderma, Palmoplantar$$021163
000041875 6531_ $$aPRP
000041875 6531_ $$aclinical tools
000041875 691__ $$aSchool of Medicine$$041369
000041875 692__ $$aDepartment of Dermatology$$041406
000041875 7001_ $$aShao, Connie$$uOregon Health and Science University$$041354
000041875 7001_ $$aVelasco, Rose$$uOregon Health and Science University$$041354
000041875 7001_ $$aGreiling, T.M.$$uOregon Health and Science University$$041354
000041875 711__ $$aResearch Week$$uOregon Health and Science University$$d2023
000041875 8564_ $$9a9734f03-73ff-4a17-bcf8-0f13808d45fc$$s267864$$uhttps://digitalcollections.ohsu.edu/record/41875/files/ResearchWeek.2023.Shao.Connie.pdf
000041875 980__ $$aResearch Week
000041875 981__ $$aPublished$$b2023-09-08