TY  - GEN
AB  - Scientific and technological developments have made it possible to test human DNA for the presence of abnormalities associated with some inherited disorders. This genetic information may become part of an individual’s medical record, creating the potential for discrimination in employment, insurance purchase, and other areas. The Genetic Information Nondiscrimination Act and Health Insurance Portability and Accountability Act have provisions intended to protect individuals from genetic discrimination, but  the healthcare industry and societal influences threaten individuals’ genetic privacy. At the same time, healthcare reform and the movement to identify the most effective medical treatments have resulted in increased interest in secondary use of individuals’ medical information, including genetic information. Through a literature review, this paper examines how data privacy, data security, and electronic health records have influenced the current understanding of genetic privacy
AD  - Oregon Health and Science University
AU  - Petersen, Carolyn
DA  - 2009
DO  - 10.6083/M4B8563D
DO  - DOI
ED  - Dorr, David
ED  - Advisor
ID  - 422
KW  - Computer Security
KW  - Genetic Privacy
KW  - Electronic Health Records
KW  - Databases, Genetic
KW  - legislation and jurisprudence
L1  - https://digitalcollections.ohsu.edu/record/422/files/423_etd.pdf
L2  - https://digitalcollections.ohsu.edu/record/422/files/423_etd.pdf
L4  - https://digitalcollections.ohsu.edu/record/422/files/423_etd.pdf
LK  - https://digitalcollections.ohsu.edu/record/422/files/423_etd.pdf
N2  - Scientific and technological developments have made it possible to test human DNA for the presence of abnormalities associated with some inherited disorders. This genetic information may become part of an individual’s medical record, creating the potential for discrimination in employment, insurance purchase, and other areas. The Genetic Information Nondiscrimination Act and Health Insurance Portability and Accountability Act have provisions intended to protect individuals from genetic discrimination, but  the healthcare industry and societal influences threaten individuals’ genetic privacy. At the same time, healthcare reform and the movement to identify the most effective medical treatments have resulted in increased interest in secondary use of individuals’ medical information, including genetic information. Through a literature review, this paper examines how data privacy, data security, and electronic health records have influenced the current understanding of genetic privacy
PB  - Oregon Health and Science University
PY  - 2009
T1  - Secondary use of genetic information in research benefits, problems, and potential approaches
TI  - Secondary use of genetic information in research benefits, problems, and potential approaches
UR  - https://digitalcollections.ohsu.edu/record/422/files/423_etd.pdf
Y1  - 2009
ER  -