000000422 001__ 422
000000422 005__ 20250311123156.0
000000422 0247_ $$2DOI$$a10.6083/M4B8563D
000000422 037__ $$aETD
000000422 245__ $$aSecondary use of genetic information in research benefits, problems, and potential approaches
000000422 260__ $$bOregon Health and Science University
000000422 269__ $$a2009
000000422 336__ $$aCapstone
000000422 502__ $$bM.B.I.
000000422 502__ $$gBiomedical Informatics
000000422 520__ $$aScientific and technological developments have made it possible to test human DNA for the presence of abnormalities associated with some inherited disorders. This genetic information may become part of an individual’s medical record, creating the potential for discrimination in employment, insurance purchase, and other areas. The Genetic Information Nondiscrimination Act and Health Insurance Portability and Accountability Act have provisions intended to protect individuals from genetic discrimination, but  the healthcare industry and societal influences threaten individuals’ genetic privacy. At the same time, healthcare reform and the movement to identify the most effective medical treatments have resulted in increased interest in secondary use of individuals’ medical information, including genetic information. Through a literature review, this paper examines how data privacy, data security, and electronic health records have influenced the current understanding of genetic privacy
000000422 540__ $$fCC BY
000000422 542__ $$fIn copyright - single owner
000000422 650__ $$aComputer Security$$029164
000000422 650__ $$aGenetic Privacy$$033843
000000422 650__ $$aElectronic Health Records$$038928
000000422 650__ $$aDatabases, Genetic$$033839
000000422 6531_ $$alegislation and jurisprudence
000000422 691__ $$aSchool of Medicine$$041369
000000422 692__ $$aDepartment of Medical Informatics and Clinical Epidemiology$$041422
000000422 7001_ $$aPetersen, Carolyn$$uOregon Health and Science University$$041354
000000422 7201_ $$aDorr, David$$uOregon Health and Science University$$041354$$7Personal$$eAdvisor
000000422 8564_ $$96b68084b-7822-4093-9d7b-6b3630408faa$$s269819$$uhttps://digitalcollections.ohsu.edu/record/422/files/423_etd.pdf
000000422 905__ $$a/rest/prod/rf/55/z7/71/rf55z7713
000000422 909CO $$ooai:digitalcollections.ohsu.edu:422$$pstudent-work
000000422 980__ $$aBiomedical Informatics