000042396 001__ 42396
000042396 005__ 20240124114342.0
000042396 0247_ $$2doi$$a10.6083/bpxhc42396
000042396 037__ $$aETD
000042396 041__ $$aeng
000042396 245__ $$aTransition of pediatric patient with congenital heart disease to adult specialty care in the United States
000042396 260__ $$bOregon Health and Science University
000042396 269__ $$a2023-11-30
000042396 336__ $$aDissertation
000042396 502__ $$bPh.D.
000042396 502__ $$gNursing
000042396 520__ $$aPatients with congenital heart disease (CHD) require uninterrupted lifelong specialized cardiac care, yet the transition years are a vulnerable time for these patients. Transition programs offer structured support to patients with CHD with the aim of improving CHD knowledge, independence in care, and providing an uninterrupted transfer process and integration into accredited adult congenital heart disease (ACHD) programs. Transition has three components: preparation, transfer and integration. The main barriers to successful transition program implementation are time and resources to complete transition practices and there is no best model for transition programs. Patients with CHD in the United States (US) have a lower occurrence of transfer to ACHD programs, and they experience more gaps in care during the transition years compared with Canada and Europe. Structured transfer processes to ACHD programs are common in Europe, but these, and overall transition practices in the US are not well understood. The purpose of this dissertation was to test a low resource intervention to facilitate patient preparation, identify factors that improve effective transfer, and evaluate transition practices in the US.
000042396 540__ $$fCC BY
000042396 542__ $$fIn copyright - single owner
000042396 6531_ $$atransition
000042396 6531_ $$acongenital heart disease (chd)
000042396 6531_ $$aadult congenital heart disease (achd)
000042396 691__ $$aSchool of Nursing$$041370
000042396 7001_ $$aBurger, Debora$$uOregon Health and Science University$$041354
000042396 8564_ $$99cdb3c0c-9736-4cdb-9c90-4e7b83bae59e$$s1209888$$uhttps://digitalcollections.ohsu.edu/record/42396/files/Burger.Debora.2023.pdf
000042396 909CO $$ooai:digitalcollections.ohsu.edu:42396$$pstudent-work
000042396 980__ $$aTheses and Dissertations
000042396 981__ $$aPublished$$b2023-12-22