@article{ETD,
      school = {M.B.I.},
      author = {Orwoll, Benjamin},
      url = {http://digitalcollections.ohsu.edu/record/7454},
      title = {Increasing access to medical documentation for  hospitalized children: a qualitative needs assessment of  parents and caregivers},
      publisher = {Oregon Health and Science University},
      abstract = {Patients are increasingly engaged in the process of health  care, including consumption of their own health data  through patient portals and apps. The OpenNotes movement  has also popularized the concept of making provider notes  available to patients. However, the increase in patient  access to their data has been largely restricted to adults  in ambulatory settings. Parents/caregivers (PCs) of  hospitalized children have unique needs, and their  attitudes toward access to health information (HI) about  those children are unknown. PCs of chronically ill children  desire increased access to written materials and medical  record data, especially in the high-stress inpatient  setting. Expansion of portal access and inpatient  OpenNotes-like initiatives may be beneficial in this  population for quality assurance and patient/family  satisfaction.},
      number = {ETD},
      doi = {https://doi.org/10.6083/x346d4717},
      recid = {7454},
      address = {2018},
}