TY  - GEN
AB  - Patients are increasingly engaged in the process of health care, including consumption of their own health data through patient portals and apps. The OpenNotes movement has also popularized the concept of making provider notes available to patients. However, the increase in patient access to their data has been largely restricted to adults in ambulatory settings. Parents/caregivers (PCs) of hospitalized children have unique needs, and their attitudes toward access to health information (HI) about those children are unknown. PCs of chronically ill children desire increased access to written materials and medical record data, especially in the high-stress inpatient setting. Expansion of portal access and inpatient OpenNotes-like initiatives may be beneficial in this population for quality assurance and patient/family satisfaction.
AD  - Oregon Health and Science University
AU  - Orwoll, Benjamin
DA  - 2018
DO  - 10.6083/x346d4717
DO  - DOI
ID  - 7454
KW  - Caregivers
KW  - Communication
KW  - Electronic Health Records
KW  - Qualitative Research
KW  - Child, Hospitalized
KW  - Patient Access to Records
KW  - hospitalized children
L1  - https://digitalcollections.ohsu.edu/record/7454/files/orwoll.ben.2018.pdf
L2  - https://digitalcollections.ohsu.edu/record/7454/files/orwoll.ben.2018.pdf
L4  - https://digitalcollections.ohsu.edu/record/7454/files/orwoll.ben.2018.pdf
LK  - https://digitalcollections.ohsu.edu/record/7454/files/orwoll.ben.2018.pdf
N2  - Patients are increasingly engaged in the process of health care, including consumption of their own health data through patient portals and apps. The OpenNotes movement has also popularized the concept of making provider notes available to patients. However, the increase in patient access to their data has been largely restricted to adults in ambulatory settings. Parents/caregivers (PCs) of hospitalized children have unique needs, and their attitudes toward access to health information (HI) about those children are unknown. PCs of chronically ill children desire increased access to written materials and medical record data, especially in the high-stress inpatient setting. Expansion of portal access and inpatient OpenNotes-like initiatives may be beneficial in this population for quality assurance and patient/family satisfaction.
PB  - Oregon Health and Science University
PB  - Oregon Health and Science University
PY  - 2018
T1  - Increasing access to medical documentation for hospitalized children: a qualitative needs assessment of parents and caregivers
TI  - Increasing access to medical documentation for hospitalized children: a qualitative needs assessment of parents and caregivers
UR  - https://digitalcollections.ohsu.edu/record/7454/files/orwoll.ben.2018.pdf
Y1  - 2018
ER  -