000007578 001__ 7578 000007578 005__ 20231129124939.0 000007578 0247_ $$2DOI$$a10.6083/d504rk87g 000007578 037__ $$aETD 000007578 245__ $$aFormal care, quality of life and patterns: decision-making involvement of african american dementia dyads 000007578 260__ $$bOregon Health and Science University 000007578 269__ $$a2019 000007578 336__ $$aDissertation 000007578 502__ $$bPh.D. 000007578 520__ $$aDementia is a multifaceted disease characterized by a decline in cognitive functioning that can impair social functioning and eventually impair a person's ability to care for oneself and the fifth leading cause of death for adults 65 years and older. An estimated 5.7 million people in the United States had a diagnosis of dementia in 2018; with total payments for health care, long-term care and hospice estimated at $277 billion. The impaired psychological and behavioral functioning characteristic of dementia negatively influences quality of life (QOL) of persons with dementia (PWD) and their caregivers. The studies in this Dissertation will examine, from a cultural context, the variability that exists within the caregiving process for African American dementia dyads concerning: 1) formal care use by the dyad, 2) the associations of various factors within the family with QOL of both members of the dyad and 3) the associations between decision-making of the PWD, formal care use and QOL of African American PWDs and their caregivers. 000007578 542__ $$fIn copyright - single owner 000007578 650__ $$aQuality of Life$$025032 000007578 650__ $$aCaregivers$$029631 000007578 650__ $$aDecision Making$$017417 000007578 650__ $$aDementia$$017461 000007578 6531_ $$aafrican americans 000007578 6531_ $$aalzheimer's disease 000007578 691__ $$aSchool of Nursing$$041370 000007578 7001_ $$aBonds, Kalisha 000007578 8564_ $$9d0f9241e-3844-429d-af34-568af8f21a1c$$s849274$$uhttps://digitalcollections.ohsu.edu/record/7578/files/bonds.kalisha.2019.pdf 000007578 905__ $$a/rest/prod/d5/04/rk/87/d504rk87g 000007578 909CO $$ooai:digitalcollections.ohsu.edu:7578$$pstudent-work 000007578 980__ $$aTheses and Dissertations