000007654 001__ 7654 000007654 005__ 20240124114248.0 000007654 0247_ $$2DOI$$a10.6083/m4pn9502 000007654 037__ $$aETD 000007654 245__ $$aPrevalence, predictors, and experience of food insecurity among individuals with inborn errors of metabolism 000007654 260__ $$bOregon Health and Science University 000007654 269__ $$a2017 000007654 336__ $$aThesis 000007654 502__ $$bM.S. 000007654 520__ $$aThe purpose of this study was to identify the prevalence, predictors and experience of food insecurity among patients seen in the Oregon Health & Science University (OHSU) Metabolic Clinic. The OHSU Metabolic Clinic serves patients with IEMs residing throughout Oregon and southwest Washington. The OHSU Metabolic Clinic began screening for food insecurity in February 2016 using a validated 2-question screening questionnaire (3). The screening form also includes an additional, adapted version of the 2-question questionnaire to screen for food insecurity related specifically to medical formulas and low-protein medical foods. All patients who responded to the survey were provided with a handout with a list of food resources and assistance programs. A retrospective chart review of the OHSU electronic medical record was completed to review patient responses to screening questions and to record patient characteristics that may be associated with food insecurity. Additionally, a cohort of adult patients was recruited to complete a survey exploring the relationship between IEMs and food insecurity, quality of life, and overall financial burden. 000007654 650__ $$aMetabolism$$022101 000007654 650__ $$aRisk Factors $$025522 000007654 650__ $$aFood Supply $$019187 000007654 650__ $$aFood Assistance $$040158 000007654 651__ $$aOregon$$041094 000007654 6531_ $$ainborn errors 000007654 691__ $$aSchool of Medicine$$041369 000007654 7001_ $$aHudson, Sara J. 000007654 8564_ $$95aafaf27-ed3a-4377-9cdb-7468245a766d$$s788703$$uhttps://digitalcollections.ohsu.edu/record/7654/files/Hudson.Sara.2017.pdf 000007654 905__ $$a/rest/prod/nk/32/2d/99/nk322d99w 000007654 909CO $$ooai:digitalcollections.ohsu.edu:7654$$pstudent-work 000007654 980__ $$aTheses and Dissertations